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  1. ((hugs)) it’s so hard to explain to someone else how much pain changes everything,. I know the location of every single bench/rock/wall at the theme park my kids love and as much as people like to think it’s because of “laziness” it’s impossible to explain to them that pain is a bigger factor and that pain forces it to be a choice over what has to be done and what you want to get done. Hearing people use the words “but it’s just” honestly makes me want to slap them lol. Hugs Crystal xx

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    1. So true! So very, very true. Pain does force you to choose over what you NEED to do vs want. Need always wins out, at least in my case. I need to get the move outta the way.

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  2. I wonder if you had another invisible condition, like heart disease or liver disease, if people would still say that. Pain is the fifth vital sign – and sadly many people forget that it’s just as important to get control of, just like blood pressure, pulse, or breathing. I’m sorry I’m not closer – I’d help in a heartbeat.

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    1. Thank you Karen! And it’s no problem, I understand that 🙂 it’s true, it’s a fifth vital sign. One that I ignore generally anyway for the sake of getting things done :/ haha. Hope you are well!

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  3. chronic pain really does make even daily tasks so much harder…i deal with chronic pain too and it’s not easy and it is so frustrating when people don’t understand or won’t even try to understand how difficult things can be

    hope the move goes smoothly 🙂

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  4. The one thing I hate about my condition more than anything is having to “explain” to people who know your story why “I can’t”. I take it very personally because in essence I feel s if people are saying with those two small words…I don’t believe you…you are just lazy….you are making this up….you are a hypochondriac. I feel no compassion and I feel devalued. I hate it Jess so I get it. Even doctors look at me like I am a big faker. I get maybe 3-4 hours of sleep a night if I am lucky and yet the very people that witness my lack of sleep act like I am crazy when I mention how exhausted I am. Not only am I in constant pain and am robbed of my quality of life but then I have to feel guilty about it when really all I want is a hug and understanding. I am not asking for anything more.

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