1. Verlene

    Warning, venting ahead! My tells are with a rare nerve disease (Small Fiber Neuropathy) plus Crohn’s, I hardly leave my bed because the pain, and especially the fatigue, is indescribable, just overwhelming. I feel like I am coming down with the bad flu every day. I venture out of the house only once a week because it takes all of my saved spoons to blow dry my hair….and on the ride over, I will become a total bitch, a raging maniac. My hubby knows this is the “tell” that I have way overdone it already. Or when I can barely drag myself out of the bed, he will interrupt my slow walk to go get my glass of water himself. If he notices I am overly quiet, he knows the depression has overtaken me and he will gently ask me if I want to take a drive or sit on the patio. And if I am really anxious, he comes and watches TV in bed with me. Just having the company sometimes takes the edge off the anxiety…until the next morning when the crazy train starts all over again. I’m sick of doctors, sick of pills and I’m even sick of myself most days.

    Thanks for letting me vent. That was a great post, Jess, made me think of all the ways my illness has affected my husband, too. Hope you get some relief soon. You might check into Cymbalta as it helps with both depression and pain at once without turning you into a zombie of epic proportions. Keep writing as I’m reading every day even if I don’t comment much!


    1. Thank you so much for this comment, Verlene! Your husband sounds amazingly supportive. I relate to what you said. I will look into that! If it’s approved by ODSP I will definitely give it a go. Thank you again!


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