When I wrote this piece for Stigma Fighters Canada, I wasn’t expecting it to reach as many people as it did. After all, I’ve written about my struggles with Multiple Hereditary Exostoses, depression and anxiety several times before.
But there was something about this post, about how it was written or perhaps maybe the content in itself, that hit home for many people struggling with this disorder. A lot of people have reached out to thank me for successfully explaining just how it feels. Words often escape us when we attempt to describe what we are going through, because it’s just so complex and difficult. It’s hard to explain it all in a few short sentences, and I honestly thought I didn’t come close to hitting the mark with that post…but I somehow did.
I’m entirely grateful for that. I know what it’s like to feel completely alone in this; to feel like nobody understands what I’m going through or dealing with. When I was younger, an eloquently written piece about what I was dealing with would have made me feel so less alone.
While I still don’t think “eloquently” is an appropriate way to describe me (I swear like a trucker and mispronounce every other spoken word, hola!), I’m still grateful that my words have reached the hearts of other people and made them feel a little less alone.
I’m going to be working on a couple of projects for the MHE community, and I couldn’t be more excited or thankful for the opportunity. This is obviously a cause that is very near and dear to my heart; not only have I lived with this disease all my life, but both of my sons inherited it and they will both face many battles because of it. If I can help ease their struggles a little with my words and advocating, then I definitely will.
More to come on that later.
In the mean time, I just wanted to express my thanks for all of the words of support, love and hope that came from those of you who shared the Chronic Pain, Depression and Anxiety post.
I would also like to point you in the direction of the blog of the wonderful Allie Burke; bestselling author, VP of Operations for Stigma Fighters, and dearest friend. She asked me to write a guest post and I did, so you can find more words from me there today.