6 Comments

  1. Sarah

    I’m constantly having to reassure my wife that I love her in spite of her illness, that her illness does not define who she is. She has days where she just cannot get anything done because of the pain and fatigue, and she feels like a less of a human being when she is like that. I have to remind her that she is improving, she is getting better its just really slow, and when she has bad days its ok to drop everything and do what she needs to do to take care of herself. I’m happy for you that you have an understanding husband that gets it, because it makes your journey a little easier to travel. Thank you for sharing.

    Reply

    1. Thank you Sarah! I am sorry that you and your wife know this struggle, but I am so happy your wife has YOU! Seriously, it makes a world of difference having a loving spouse who just gets it, just like you said!

      Reply
  2. Tony

    This winter and now spring has been the worst for my MHE also……pain, heat and sleep is my routine

    Reply

    1. I’m so sorry Tony. Hopefully we both get respite soon from this, maybe with a lovely hot summer.

      Reply

  3. Two words: Alexander Technique….. seriously. Empowers you to deal with pain. Find a local practitioner and book yourself a couple of sessions… see @AlexanderTechUK on Twitter for explanation. Good luck.

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  4. Yes you are better than that but some days a good pity party is what it takes to remember it. If I decide to have one I always include great refreshments! Keep on doing it J.C.

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