3 Comments

  1. Mom

    Oh Sweetheart….(((big hugs)))….I ❤️ you soooo much and am sooo proud of you! Stay strong and keep on smiling, Beautiful! 😙 XXOO

    Reply
    1. Mom

      Oh Sweetheart….(((big hugs)))….I ❤️ you soooo much and am sooo proud of you! Stay strong and keep on smiling, Beautiful! 😙 XXOO

      Reply
  2. Christs

    You my friend are amazing.
    P is the same rare mutation as you, I don’t have the (I use the term loosely) benefit of knowing what she’s going through, how she feels, how this stupid disease affects everything from her friendships to her self esteem.
    I’m so very grateful for you, and others who have walked the path. You all help me to understand and better support my kiddo.
    xo

    Reply

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